The program was developed under the leadership of Dr. David Amron, Founder and Medical Director of The Roxbury Institute, in collaboration with Karen Herbst, Ph.D., M.D., Head of Research and Director of Diagnosis and Prevention.

On March 9, the musician Doja Cat shared in a TikTok video that she believes she has lipedema, a chronic, progressive condition characterized by painful subcutaneous fat buildup. “Lipedema runs in my family,” she said in the post, calling her realization a late-night “epiphany.” “I always thought that it was cellulite.”

Understanding what medical gaslighting looks like, especially in the context of lipedema, and learning how to advocate for yourself can help you take back control of your care and ensure your symptoms are taken seriously.